You’re not alone.
When you’re here, you’re part of a globally connected community committed to eliminating the challenges of rare disease. Global Genes is committed to providing information, resources and connections to all communities affected by rare diseases.
Find Your ResourcesWhat is RARE Concierge Patient Services?
Our RARE Concierge patient service guides are here to help you navigate the complicated world of rare and undiagnosed diseases. No matter where you are in the world, your journey, or what your unique need is, RARE Concierge can help you.
Our team has decades of personal and professional experience in rare disease advocacy and support. As patients, caregivers, and advocates, we understand the challenges you and your family face. RARE Concierge can provide resources, education, and important connection free of charge.
Distinct types of Rare and Genetic Diseases
Million People Suffer From a Rare Disease Globally
Patients Diagnosed with a Rare Disease is a Child
Children with a Rare Disease Won’t Live to See Their 5th Birthday
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For more resources, disease-specific information, and news, search our RARE List- an extensive list of rare diseases and rare conditions.
Search Our Full RARE List
Rare Concierge
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Learn and Find the Resources You needSearch our rare disease dictionary for information and resources on specific rare diseases.
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Read the BlogLearn more about how Rare X is ‘Putting Real World Rare Disease Data in Researcher’s Hands.’
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Contacting us to reach and engageResearchers and Research institutions interested in reaching out to patients for research purposes should contact us now to get started.